Archive for May 23rd, 2007

Your money…making a difference

I received this from the guys at the Vancouver CCFF today and I thought it well worth posting here so that you can know that there are real and tangible advance being made in CF providing very real hope for people every day. 

Your sponsorship helps directly to make a difference and continue this positive trend. 

You are making a difference by sponsoring me so thank you!

Making a Difference

The work being done by the Foundation and Chapter volunteers is funding important research that’s making a very real difference in CF treatment. The progress made over the past four decades speaks for itself.

  • 1960 Life expectancy for children with CF is four years of age.

  • 1979 Only 13% of CF patients registered at clinics are adults.

  • 1989 Canadian scientists discover the defective gene responsible for CF.

  • 1995 The median age of survival for a person with CF is now 31 years of age.

  • 2000 Over 45% of all Canadians with CF were 18 years, or older. Cystic fibrosis is no longer only a children’s disease.

  • 2003 Median age of survival reaches 35.9 years of age.

  • 2004 Median age of survival reaches 37 years of age.

Researchers have identified over 1000 mutations of the gene responsible for CF and are now researching other genes which may be additional modifiers for how the body handles CF.

Great website – cfvancouver

This is a great website: the Vancouver and Lower Mainland Chapter of the Canadian Cystic Fibrosis Foundation.  These are the guys who are doing a great job organising GearUp4CF ride and this website has lots of useful links on it both for people with CF and also they have a very useful page containing links to CF research news, which is handy to me!!


About this blog

I'm James Zlosnik, a research scientist at the Child and Family Research Institute at UBC in Vancouver, British Columbia, Canada.

This June my boss, David Speert, and others are organising the second annual gearup4cf bike ride from Vancouver to Calgary, Canada and I shall be joining them. The aim of this ride is to raise money for the Canadian Cystic Fibrosis Foundation.

I'm writing this blog to encourage you to sponsor me or others on this ride and give money to the very worthwhile cause.

Flickr Photos

May 2007
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